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My Parents are Dead and My Sister is Disabled

congalineofdurin:

cockismybusiness:

team—wolverine:

therealbarbielifts:

eisforedna:

On May 28th, my sister, Edna, turned 31.

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Her mental age is about three years old. She loves Winnie the Pooh, Beauty & the Beast, and Sesame Street. Even though the below picture is unconvincing. 

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Edna and “Cookie.” I think she was trying to play it cool. 

My name is Jeanie. I’m Edna’s younger sister. I’m also her guardian and caregiver. 

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That’s me on the left. (Hey, you never know. After a year of writing a blog about online dating - Jeanie Does the Internet - I’ve come to learn that there are A LOT of fools on the internet.) 

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ANYWAY, I’m not “doing the internet” anymore. I’m taking care of Edna full-time, after completing my MFA in Writing for Screen & Television at USC.

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May 16, 2014. I wanted a picture. Edna wanted breakfast.

In case you’re wondering where our parents are, they’re dead. Our mom died of breast cancer when she was just 33. 

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Us with mom before she died. (Obviously.)

As for our dad, he peaced-out around the time my mom got sick. His loss - we’re awesome. 

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Here we are being awesome at the beach. Pushing a wheelchair in the sand? Not so awesome. 

In case you’re wondering “What’s wrong?” with my sister - as a stranger once asked me on the street  -  NOTHING. Yes, Edna has a rare form of epilepsy - Lennox-Gastaut syndrome - but I don’t know if that’s anymore “wrong” than people who don’t have manners. 

Basically, Edna was born “normal,” and started having seizures as a baby. They eventually got so bad that they cut off the oxygen to her brain, causing her to be mentally disabled. Or impaired. Or intellectually disabled. Or whatever you want to call it - except “retarded,” because in 2010, President Obama signed Rosa’s Law into effect, replacing that word with “intellectually impaired.” 

Which is cool and all, but services for the disabled and the people who care for them are SEVERELY LACKING. Also, there’s a bunch of people working in taxpayer-funded positions who are supposed to help families like us, but don’t. (Big surprise, I know.) They just fill out paperwork (whenever they feel like it) with asinine statements like this: 

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YUP. I transport my sister down the stairs in her wheelchair, because that is not only safe, but TOTALLY PRACTICAL. Why doesn’t everyone in a wheelchair just take the stairs, for God’s sake? Stop being so lazy, PEOPLE WITHOUT WORKING LEGS! 

But, as it says above, Edna’s legs do work. Whether or not she wants them to, is another story. 

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Edna refusing to go inside. 

These are the stairs that I have to carry her up - by myself - on a daily basis. That is, until one of my legs break and both of us are just sitting at the bottom of the stairs, helpless. 

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For six months, I have begged - BEGGED - the State of California to help my sister, which they are required by law - The Lanterman Act specifically - to do so. But they’ve told me “these things take time” and that I “need to amend my expectations.” (That was said to me when I refused to place Edna at AN ALL-MALE CARE FACILITY. Because yes, that was an “option” that was offered to me.) 

Prior to Edna moving in with me in my one-bedroom apartment, she was living with her amazing caregiver, Gaby, back in Tucson, where we went to high school and I did my undergrad. Edna’s reppin’ the Wildcats below. 

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But back in November, Gaby also died from breast cancer. (FUCK YOU, BREAST CANCER!) This picture was taken a month before she died. She never even told me she was sick because she didn’t want me to worry. 

By the way, we were raised by our grandma. Edna and her were very close.

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She’s dead, too. Surprise.

She died when I was 20 and Edna was 21. That’s when I became Edna’s legal guardian and Gaby stepped into the picture to help me out with Edna. 

So, six months ago, after Gaby died, I moved Edna to California, where I tried to get the folks over at The Frank D. Lanterman Regional Center to help me. I’ve told them I’m worried about our safety - that one of us could get hurt on the stairs -  I’ve told them I can’t afford to pay the private babysitters $15/hour because the ones social services sent me who make $9/hour were unreliable (they didn’t show up on time or at all so I could get to school and work), untrustworthy (one of them let Edna go to the bathroom in the kitchen and then took her into the bathroom because “that what I thought I was supposed to do.”) 

But the people over at the FLRC don’t return my calls, they don’t file the paperwork on time - and the first caseworker that was assigned to us actually LAUGHED AT my sister when he came to our home to evaluate her. When I reported him to his supervisor, she told me, “That’s just [insert name of said jackass].” 

He was one of the two caseworkers that contributed to the report I mentioned above, which also included this: 

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So let me get this straight - I have to feed, bathe, dress and help Edna in the bathroom and you can’t deduce whether or not she is able to vote? What in the fuck?!

Now I realize I seem angry. And you can bet your balls I am. I’m also sad. Sad for those who don’t have family to stick up from them and who waste away God knows where, monitored by no one. Or monitored by people who physically and sexually assault them

I’m also sad for the caregivers who are SO EXHAUSTED - trying to take care of their loved ones - while also trying to take care of themselves and battling a system that is supposed to help, but does nothing of the sort. And I know a lot of people give up. They let their dreams, their marriages, their friendships slide. All while trying not to resent the very person you’re doing it all for.

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Edna wanted to sit next to me the other day while I was writing. Clearly, she’s not impressed. 

Here’s the thing: I REFUSE TO GIVE UP. I’M NOT GIVING UP ON HER OR MYSELF. I’m going to pursue my dreams while taking care of her, AND while ensuring that the people paid to do their jobs ACTUALLY do them.

That’s where you come in. I need you to help me get my story out there. Because I know I’m not alone in this. I want to connect with families who are in similar situations and also show people who have no idea what it’s like to care for someone with a disability (or even a loved one who is sick) that it can be rewarding. Super fucking hard. Exhausting. Painful. Isolating. But, rewarding. 

I’m going to get help for my sister - and others. My hope is that by sharing our story, I can bring awareness to the lack of services and help for the disabled. 

Thank you, 

Jeanie 

Facebook:  facebook.com/eisforedna

Twitter: @EisforEdna 

This made me cry

SIGNAL BOOST

STOP SCROLLING. THIS PERSON ISN’T ASKING FOR MONEY AND THIS POST WON’T MAKE YOU SAD.

This is a really uplifting and inspirational story of a family sticking by each other and making things work despite a whole lot of shit

They just want to find other people in the same position they are, for a sense of community and to feel like they aren’t alone.

I know out of all of you, some of you have followers who are living with and taking care of intellectually or emotionally disabled family members, and this lovely and unbreakable pair of sisters need to find them.

SIGNAL BOOOOOOOOOST

you know I actually read this whole thing, and my favorite part was when she said **** you breast cancer. I mean like of all the things to say about how breast cancer ruined her life, or how she still is living and not suicidal after having 3 best friends dead/relaitives, 2 from breast cancer, she still is watching out for her sister and is dedicated to making her feel safe and normal. I was thinking she was gonna ask for money, and this is one thing I would MAKE a paypal for, but she deserves money, but she doesn’t ask for it, God bless you.

(Source: )

ask-violet-factory:

THREE HUNDRED FIFTY PLUS FOLLOWERS CONTEST GO! 

RULES

  • Must be following me
  • Likes and Reblogs count
  • Don’t unfollow if you don’t win.

ENDS AUGUST THIRTEENTH (two weeks) 

The reason the contest is so short is that School starts in August and I want to get this over with by then.

PRIZES 

  1. FIRST PLACE GETS A COLLORED AND SHINED PICTURE OF CARACHTER OF THEIR CHOICE 
  2. SECOND PLACE GETS A COLORED IMAGE OF CARACHTER OF THEIR CHOICE
  3. THIRD PLACE GETS A COLORED OUTLINE (Ask A Derpy Timelord Style)
  4. FOURTH PLACE GETS A PLAIN BLACK LINEART
  5. FIFTH GETS A (top layer) SKETCH (I use more than one layer)

My files are hard to navigate shut up

HAVE FUN! ENDS ON AUGUST 13!

rainbowrosemelody-mod:

br0k3n-dreamland:

LISTEN UP FUCKERS HERE’S A BUTT LOAD OF THINGS TO WATCH WHEN YOU ARE SICK

cold: get tissues, drink lots of water, get some cough lollies, oranges help too, get hot drinks, take a warm shower and have lots of rest :3
vomit sick: gross.. jk jk, try not to eat foods that make you feel sick, keep a bucket by you and drink water :)) also try some medicine :))
google it if you feel a different type of sick bc im not a doctor .-.

FUCKING SICK AS MARVEL MOVIES
The Avengers
Iron Man
Iron Man 2
Iron Man 3
Thor
Thor: The Dark World
Captain America: The First Avenger
Hulk
The Incredible Hulk
Fantastic Four
Fantastic Four: Rise of the Silver Surfer
X-Men
X2
X-Men: The Last Stand
X-Men Origins: Wolverine
X-Men: First Class
The Wolverine
Blade
Blade II
Blade: Trinity
Spider-Man
Spider-Man 2
Spider-Man 3
The Amazing Spider-Man
The Amazing Spider-Man 2
Daredevil
Elektra
The Punisher
Punisher: War Zone
Man-Thing
Ghost Rider
Ghost Rider: Spirit of Vengeance

FUGGIN BAT DUDE

batman begins
the dark knight
the dark knight rises

KICK ASS DISNEY MOVIES

 Snow White and the Seven Dwarves
Fantasia
Pinocchio 
Dumbo
The Reluctant Dragon
Bambi 
Saludos Amigos 
Victory Through Air Power 
The Three Caballeros 
Make Mine Music 
Song of the South
Fun and Fancy Free
Melody Time
The Adventures Of Ichabod and Mr. Toad
Cinderella 
Alice in Wonderland 
Peter Pan
20,000 Leagues Under the Sea 
Lady and the Tramp 
Old Yeller 
Darby O’Gill and the Little People 
Sleeping Beauty 
Swiss Family Robinson 
101 Dalmatians
The Sword in the Stone 

Mary Poppins 
That Darn Cat 
The Jungle Book
The Love Bug 
The Aristocats 
Bedknobs and Broomsticks 
The Million Dollar Duck 
Robin Hood
Herbie Rides Again 
Pete’s Dragon 
The Many Adventures of Winnie the Pooh
The Rescuers
The Fox and the Hound
A Disney Christmas Gift 
The Black Cauldron
The Great Mouse Detective 
Oliver & Company 
Who Framed Roger Rabbit 
The Little Mermaid 
Ducktales The Movie - Treasure of the Lost Lamp 
The Rescuers Down Under 
Beauty and the Beast
The Nightmare Before Christmas
Aladdin -The Return of Jafar 
Aladdin
The Lion King 
A Goofy Movie
Pocahontas 
Toy Story
Aladdin and the King of Thieves 
James and the Giant Peach 
The Hunchback of Notre Dame 
Beauty and the Beast - The Enchanted Christmas
Hercules 
Winnie The Pooh’s Most Grand Adventure 
A Bug’s Life
Belle’s Magical World
Mulan
Pocahontas II - Journey to a New World
The Lion King 2 - Simba’s Pride
Mickey’s Once Upon A Christmas
Tarzan 
Toy Story 2
Winnie The Pooh-Seasons of Giving
An Extremely Goofy Movie 
Buzz Lightyear Of Star Command, The Adventure Begins
Dinosaur 
Fantasia 2000
The Emperor’s New Groove
The Little Mermaid 2-Return to the Sea 
The Tigger Movie
Atlantis The Lost Empire
Lady And The Tramp II - Scamp’s Adventure
Mickey’s Magical Christmas-Snowed In at the House of Mouse 
Monsters, Inc. 
Cinderella II - Dreams Come True
Lilo And Stitch 
Mickey’s House of Mouse - The Villains
Return to Never Land
Tarzan & Jane
The Hunchback of Notre Dame II
Treasure Planet
Winnie the Pooh-A Very Merry Pooh Year 
101 Dalmatians 2 - Patch’s London Adventure 
Atlantis 2 Milo’s Return 
Brother Bear 
Finding Nemo 
Kim Possible - A Stitch In Time
Piglet’s Big Movie 
Stitch! The Movie 
The Jungle Book 2 
Home On The Range
Kim Possible - The Villain Files 
Mickey Donald Goofy-The Three Musketeers 
Mickeys Twice Upon a Christmas 
The Incredibles 
The Lion King 1-1.5 - Hakuna Matata
Winnie the Pooh - Springtime With Roo
Chicken Little
Disney’s Christmas Favourites
Kim Possible - So The Drama
Kronk’s New Groove
Lilo and Stitch 2 - Stitch has a Glitch 
Pooh’s Heffalump Movie 
Tarzan II 
Bambi II 
Brother Bear 2 
Cars 
Leroy & Stitch
The Fox and the Hound 2 
Cinderella III - A Twist in Time
Disney Princess Enchanted Tales - Follow Your Dreams
Enchanted 
Meet The Robinsons 
Ratatouille
Bolt
The Little Mermaid - Ariel’s Beginning
Tinker Bell 
Wall-E
Tinkerbell and the lost treasure
Princess and the Frog
Up
Tangled
Tinker bell and the Great Fairy Rescue
Toy Story 3
Phineas and Ferb: across the 2nd dimension
Winnie the Pooh
Cars 2
Mars needs moms
Frankenweenie
Wreck-it Ralph
Brave
Tinkerbell Secret of the wings
Planes
Monsters University
Frozen

SOME SICK AS PIXAR MOVIES

Toy Story 
Toy Story 2 
Toy Story 3 
A Bug’s Life 
Monsters, Inc.
Finding Nemo 
The Incredibles 
Cars 
Cars 2 
Ratatouille 
WALL-E
Up 
Brave 

PIRATES OF THE FRICKING CARIBBEAN

Pirates of the Caribbean: The Curse of the Black PearlPirates of the Caribbean: Dead Man’s Chest
Pirates of the Caribbean: At World’s End
Pirates of the Caribbean: On Stranger Tides

FUCK YEAH HARRY POTTER

Harry Potter and the Sorcerer’s Stone 
Harry Potter and the Chamber of Secrets 
Harry Potter and the Prisoner of Azkaban 
Harry Potter and the Goblet of Fire 
Harry Potter and the Order of the Phoenix 
Harry Potter and the Half-Blood Prince 
Harry Potter and the Deathly Hallows, Part One 
Harry Potter and the Deathly Hallows, Part Two 

LORD OF THE RINGSSSS

lord of the rings: the fellowship of the ring
lord of the rings: the two towers
lord of the rings: the return of the king

THE HOBBIT HELL YEA

The hobbit: an unexpected journey
the hobbit: the desolation of smaug

THE FUGGIN’ HUNGER GAMES

the hunger games
the hunger games: catching fire

POKEMON IS COOL TOO

Series
Mewtwo Strikes Back
The Power of One - Lugia
Spell of the Unknown - Entei
Voice of the Forest - Celebi
Heroes - Latios and Latias
Wishmaker - Jirachi
Destiny - Deoxys
Lucario and the Mystery of Mew
Ranger and the Temple of the Sea
Rise of Darkrai
Giratina and the Sky Warrior
Arceus and the Jewel of Life
Zoroark Master of Illusions
Black - Victini and Reshiram
White - Victini and Zekrom
Kyurem vs. The Sword of Justice
Genesect and the Legend Awakened

SOME FUNNY MOVIES THAT WILL MAKE YOU FEEL LESS CRAP

white chicks
21 jump street
freaky friday
the hot chick
just go with it
pitch perfect
the parent trap
she’s the man
mean girls
the goonies
due date
you again
easy a
date night
wedding crashers
superbad
bridemaids
without a paddle
Juno
Without A Paddle
Whip It
Adventure Land
Friends With Benefits
Project X
Sex Drive
Mean Girls
17 Again
Alice In Wonderland (Remake)
This Is The End
Wedding Crashers
It’s Kind Of A Funny Story
Tropic Thunder
Roll Models
Evan Almighty
The Breakfast Club

TIM BURTON (bc he’s almost as sick as you lmao)

the nightmare before christmas
sleepy hollow
big fish
alice in wonderland
frankenweenie
beetlejuice
edward scissorhands
charlie and the chocolate factory
dark shadows 

LEONARDO DICAPRIO MOVIES

Critters 3 (1991)
This Boy’s Life (1993)
What’s Eating Gilbert Grape (1993)
The Basketball Diaries (1995)
Total Eclipse (1995)
Romeo + Juliet (1996)
Marvin’s Room (1996)
Titanic (1997)
The Man In The Iron Mask (1998)
The Beach (2000)
Gangs Of New York (2002)
Catch Me If You Can (2002)
The Aviator (2004)
The Departed (2006)
Blood Diamond (2006)
Body Of Lies (2008)
Revolutionary Road (2008)
Shutter Island (2010)
Inception (2010)
J. Edgar (2011)
Django Unchained (2012)
The Great Gatsby (2013)
The Wolf of Wall Street (2013)

90s MOVIES BC WHY THE FRICK NOT

Lord of the Flies (1990)
Cry-baby (1990)
Pretty Woman (1990)
My Girl (1991)
The Addams Family (1991)
Poison Ivy (1992)
Wayne’s World (1992)
The Crush (1993)
The Sandlot (1993)
Dazed and Confused (1993)
Pulp Fiction (1994)
Clueless (1995)
Empire Records (1995)
Kids (1995)
Foxfire (1996)
The Craft (1996)
Space Jam (1996)
I Know What You Did Last Summer (1997)
Romy and Michele’s High School Reunion (1997)
Chasing Amy (1997)
Can’t Hardly Wait (1998)
There’s Something About Mary (1998)
Jawbreaker (1999)
Cruel Intentions (1999)
Drive Me Crazy (1999)
10 Things I Hate About You (1999)
American Pie (1999)
The Virgin Suicides (1999)
She’s All That (1999)
American Beauty (1999)
Girl Interrupted (1999)

SCARY MOVIES (ooh spooky)

the purge 
the grudge 
the grudge 2 
the grudge 3 
the lost boys 
insidious 
insidious chapter 2 
one missed call 
paranormal activity 1 / 2 / 3 / 4 / 5 
carrie (1976)
carrie (2013)
the conjuring 
Don’t be Afraid of the Dark
The Omen
Sinister
The Hole

SHREK?

Shrek
Shrek 2
Shrek the Third
Shrek Forever After

STAR WARSSSS

Episode I: The Phantom Menace
Episode II: Attack of the Clones
Episode III: Revenge of the Sith
Episode IV: A New Hope
Episode V: The Empire Strikes Back
Episode VI: Return of the Jedi

SOME GR8 ANIME FOR YOU FUCKERS

Attack on Titan
Black Butler
D.Gray-man
Free! - Iwatobi Swim Club
Fullmetal Alchemist
Fullmetal Alchemist Brotherhood
Fruits Basket
Naruto
Naruto Shippuden
Ouran High School Host Club
Soul Eater

MOTHER HECKIN’ TV SHOWS 

The Office
Suburgatory
Puberty Blues
Breaking Bad
South Park
Workaholics
Adventure Time
Spongebob Squarepants 
The Big Bang Theory
The Walking Dead
Parks and Recreation 
Freaks And Geeks
Modern Family
It’s Always Sunny In Philadelphia
Avatar: The Last Airbender
American Horror Stor
Supernatural
Family Guy
American Dad!
Bob’s Burgers
Futurama
2 Broke Girls
Arrested Development
Beavis and Butthead
Community
Daria
Doctor Who
Game Of Thrones
How I Met Your Mother
iCarly
Ja’mie: Private School Girl
Jersey Shore
Kath and Kim
Keeping Up With The Kardashians
King Of The Hill
Lizzie McGuire
Malcolm In The Middle
Raising Hope
Regular Show
hannibal
sherlock

ENJOY YOU LIL SHITS

This is perf

(Source: midwestpoppunk)

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